Our son Jayson was diagnosed with FHL (Familial Hemophagocytic Lymphohistiocytosis) in February of 1999. The Histiocyte Society had a "HLH-94" protocol as the treatment plan, a stem cell transplant was also required as part of this treatment. I was a 7 of 8 HLA match and was his donor. Jayson began his weekly conditioning therapy at the Cross Cancer Institute in Edmonton, Alberta, Canada. At the end of April we took Jay to the Alberta Children's Hospital in Calgary, Alberta for the transplant part of the protocol. His stem cell transplant was on the 10th of May 1999 and he engrafted on the 19th of May. Jay was doing well until about the 25th of May when he had to be sent to the ICU with what was diagnosed as VOD (hepatic veno-occlusive disease), his abdomen was also very distended from fluid build up. In the ICU he was treated with tPA and heparin. After five days of this treatment his liver functions began to return to normal and a few days later he was readmitted to the oncology unit. He had a relapse on the 4th of June (he stopped breathing for no apparent reason) and was sent back to the ICU, this time he had to be intubated as the fluid build up in his abdomen was beginning to cause him breathing problems. Jay's liver functions became worse and he began to show signs of multiple organ failure, he had to be put on dialysis due to renal failure. He also had to be given medicine to regulate his blood pressure. Jayson lived for a short time after this and passed away on the 8th of June 1999 at 09:57 AM.